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THE SCIENTIFIC ADVISORY BOARD MAINTAINS THE RESEARCH FOCUS ON TREATMENTS THAT CAN PROCEED FROM CLINIC  TO PATIENTS AS SOON AS POSSIBLE 

The PACS1 Syndrome Research Foundation is PURELY research focused, funding scientific research towards finding a cure for PACS1 Syndrome. We do not have an advocacy wing.

JOIN US, DONATE, AND MAKE A DIFFERENCE TODAY 
Over $1.4 million invested in cutting-edge scientific research to accelerate the search for a cure for PACS1 Syndrome. 

PACS1 Syndrome Research Foundation

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