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THE SCIENTIFIC ADVISORY BOARD MAINTAINS THE RESEARCH FOCUS ON TREATMENTS THAT CAN PROCEED FROM CLINIC  TO PATIENTS AS SOON AS POSSIBLE 

PLEASE NOTE: The PACS1 Syndrome Research Foundation is purely research focused  towards funding scientific research towards finding a cure for PACS1 Syndrome. We do NOT have an advocacy wing.

JOIN US, DONATE, AND MAKE A DIFFERENCE TODAY 
Over $1.4 million invested in cutting-edge scientific research to accelerate the search for a cure for PACS1 Syndrome. 

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